PPSN case study
Pelvic Pain Support Network (PPSN)
Introduction to PPSN
PPSN is a support organisation for people and families affected by pelvic pain. They provide
information, support and advocacy for patients, families and their carers, as well as promoting
education for clinicians and the public about pelvic pain. They also encourage research into the
impact of pelvic pain on the quality of life.
Their ultimate aim is that all people affected by pelvic pain have access to support and information and for the organisation to have a strong link with health professionals.
Based – Poole, Dorset
Number of Staff – 2 Volunteers
Key Projects and Outcomes
- To develop their website further including having a level of interaction between patients and clinicians via the website, and making the website more accessible.
- To have a means of keeping in contact with and providing information to patients and clinicians
- To fund a complete IT project
Evolve Actions and Developments
- Look into options and issues regarding message boards.
- Provide information on website accessibility
- Provide email newsletter information
- Provide information on IT funding
- Provide information on data protection, H&S, back up, folder and file organisation, housekeeping
Summary of Achievements
Following the provision of information for all projects from Evolve, PPSN were able to set up
and develop an Email newsletter which is now being distributed to all their user groups on a
regular basis. This allows then not only to contact their stakeholders, but to gather crucial
information about each individual subscriber, their interests and needs. This in turn will help to
steer the development of the organisation. In conjunction with this Evolve was able to support PPSN
through setting up and maintaining a discussion forum.
Evolve also worked with PPSN to help put a funding bid together for ongoing ICT development relating to their website.
"We continue to work with PPSN to help them to further develop a sustainable approach to how ICT can improve their communication with their stakeholders."
Contact
Simon Duncan, Rural ICT Co-ordinator
www.evolvesouthwest.org.uk